The Kamie K Preston Hereditary Cancer Foundation

The Kamie K Preston Hereditary Cancer FoundationThe Kamie K Preston Hereditary Cancer FoundationThe Kamie K Preston Hereditary Cancer Foundation

The Kamie K Preston Hereditary Cancer Foundation

The Kamie K Preston Hereditary Cancer FoundationThe Kamie K Preston Hereditary Cancer FoundationThe Kamie K Preston Hereditary Cancer Foundation
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Providing Awareness & Funding for Hereditary Cancer Testing

Providing Awareness & Funding for Hereditary Cancer TestingProviding Awareness & Funding for Hereditary Cancer TestingProviding Awareness & Funding for Hereditary Cancer Testing

  Together we can help you create a different ending 

Providing Awareness & Funding for Hereditary Cancer Testing

Providing Awareness & Funding for Hereditary Cancer TestingProviding Awareness & Funding for Hereditary Cancer TestingProviding Awareness & Funding for Hereditary Cancer Testing

  Together we can help you create a different ending 

About Hereditary Cancer Foundation

We are a non-profit organization whose mission it is to increase awareness about Hereditary Cancer and the importance of knowing your risk. Through donations, we are able to provide Financial Assistance for genetic testing to those who meet the criteria.


**PLEASE NOTE-The Hereditary Cancer Foundation does not diagnose or perform the tests directly. We connect patients with providers who do the testing. 

Want to know if you carry a Hereditary Cancer Gene?

1. Get Tested

2. Find out Results

2. Find out Results

  Testing will check for 48 genes that are linked to 11 cancers. 

Learn more about testing

2. Find out Results

2. Find out Results

2. Find out Results

 Approximately 10-15% of Cancers can be HEREDITARY   

See what genes increase your risk

3. Take Action

2. Find out Results

3. Take Action

When you know your Risk, We can detect cancer at it's earliest stages or prevent it all together. 

Resources to help you

Frequently Asked Questions

Please reach us at hereditarycancerfoundation@gmail.com if you cannot find an answer to your question.

  • A Genetic Mutation can increase your Risk of Cancer. However, inheriting a cancer-related genetic change doesn’t mean you will definitely get cancer. It means that your risk of getting cancer is increased.
  • We know that 10-15% of cancers are genetic and can be passed on from generation to generation. 
  •  When you know your Risk, we can detect cancer at its earliest stages or possibly prevent it.
  • So, if you have a family history of cancer it might be important to see if you meet the criteria. 


  • If you have a family history of cancer, talk to your Primary Care Provider, Ob-Gyn, Oncologist. They can provide an assessment to see if testing would be appropriate. 
  • From time to time, The Hereditary Cancer Foundation sets up providers to do testing at a community event. Check our Events Page or email us for upcoming events. 
  • Contact us and we can get you in touch with more suggestions on where and how to get tested. 
  •  **PLEASE NOTE-The Hereditary Cancer Foundation does not diagnose or perform the tests directly. We connect patients with providers who do the testing. The Hereditary Cancer Foundation is in place to offer Financial Assistance for the cost of testing to those who qualify, and education & support for those who test positive.


  • The cost of testing can vary depending on your insurance. If you get tested, the testing lab will reach out to you directly if there is an out-of-pocket cost. Once tested, be sure to return all phone calls or emails to the testing lab.  
  • If cost is a factor in your getting tested, you may apply for Financial Assistance from The Hereditary Cancer Foundation. (Instructions are below on how to apply)
  •  **PLEASE NOTE-The Hereditary Cancer Foundation does not diagnose or perform the tests directly. We connect patients with providers who do the testing. The Hereditary Cancer Foundation is in place to offer Financial Assistance for the cost of testing to those who qualify, and education & support for those who test positive.


We Can Help You with Your Testing

Financial Assistance for Hereditary Cancer Genetic Testing

Requests for financial assistance can be made by patients or their healthcare providers.

Approval of funding is done on a case-by-case basis. When reviewing requests for funding the following information may be needed for approval:

1. Personal and family history of cancer

2. Healthcare provider recommendation or feedback
3. Insurance coverage
4. If an insurance denial has been appealed

If you have a family or personal history of cancer and are seeking financial assistance. Please complete the Financial Assistance document and someone from the Board or Foundation will contact you. 

Learn More About Our Financial Assistance Program

How the Kami K Preston Hereditary Cancer Foundation Started

Founding Story

  

The Kamie K Preston Hereditary Cancer Foundation was founded in honor of Kamie Preston, who lost her battle with breast cancer in 2005 at the age of 40. Kamie is remembered as a fighter, a mother, and a friend. For those who knew her, she was never a victim of breast cancer. Her cancer was first detected in 2000 when she was 35 years old. For the next five years, she spent time in and out of the hospital with relapses and tests. As the cancer progressed, Kamie began to prepare her children for a life without her. She left behind valuable genetic information for her three children as Kamie tested positive for BRCA1. 



It was in those hospital rooms Brandi learned about the genetic mutation her mother carried, a mutation she and her siblings had a 50/50 chance of also having. In addition to a mother’s typical expectations for going to college and looking out for each other, Kamie asked each of her children to learn their risks and be proactive with their health rather than reactive. Several years later, medical professionals used Kamie’s results as a starting point to test her children for the same mutation. 



As her legacy lived on, so did the need to raise awareness about the significance of hereditary cancer. The foundation was created by her oldest daughter, Brandi, in her memory, to educate and raise awareness of hereditary cancers among those most at risk.  We believe that people can take the necessary steps to fight the odds when they know the risks of developing cancer. 


Since then, Brandi has fulfilled the promise she made at her mother’s bedside. At age 19, she completed genetic testing and learned that she too carries the BRCA1 mutation, giving her an 87% lifetime risk of breast cancer and 63% lifetime risk of ovarian cancer.


“BRCA has been a gift, although not wrapped very beautifully; it has given me the ability to take control of my health and encourage others to do the same,” Brandi has said since her prophylactic mastectomy at age 22. She no longer fears suffering from or losing her life to breast cancer, like many women in her family.



For Providers:

Learn more

Hereditary Gene Carrier & Executive Director

Sarah Virus

Sarah joined The Kamie K Preston Hereditary Cancer Foundation Staff in July 2022 as our new Executive Director. 

 

Sarah met Brandi at the end of 2018, just a few days after she found out her sister had been diagnosed with BRCA2+. Brandi answered so many questions that she had and made her feel more comfortable with her decision to go ahead and get tested. Ultimately, Sarah was diagnosed with BRCA2+ in March 2019. Through testing, she found out that her family's BRCA 2 diagnosis came from her dad's side of the family, where they also found out she had another cousin who was positive. In July 2019 Sarah underwent preventative surgery and was able to use the lift chair the Foundation had. She was so grateful for the opportunity to use the lift chair and when there was a need for someone to organize the multiple chairs the Foundation had, She took on the project! Sarah and 2 other ladies involved with the Foundation founded what we now call Chairs to Recovery. Check out www.chairstorecovery.com to find out more about this program. 


Without the Hereditary Cancer Foundation, the Chairs to Recovery program, wouldn’t be able to grow and expand. When Katie, Heather, and Sarah took over in November 2020, we had 6 chairs in rotations, we now have 13 chairs and have loaned out chairs to roughly 75 women. Chairs to Recovery currently has a storage unit in Gretna that houses any chairs not in use and our Recovery Bag supplies. Each time a new woman requests a chair to use after surgery, they get a Recovery Bag, which has various items that we have found helpful in recovery. 


Sarah has jumped in to start making improvements in all areas of the Foundation and Chairs to Recovery. She is working to get a better inventory system to track Recovery Bag items, a chair check-out system, and expanding the program to Central Nebraska for Chairs to Recovery! For the Foundation, Sarah has been working on restarting group outings, new fundraising ideas, updating the websites with the most up-to-date information, and other day-to-day activities. 


The foundation's main focus will be to support, educate and develop relationships with those with a hereditary cancer diagnosis. Sarah looks forward to finding new and exciting ways to implement that mission!

Donate to The Hereditary Cancer Foundation

Our services rely 100% on donations to help fund testing and awareness

If you would like to give a MONETARY Donation, please click here! We appreciate your donations!

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