Founding Story
The Kamie K Preston Hereditary Cancer Foundation was founded in honor of Kamie Preston, who lost her battle with breast cancer in 2005 at the age of 40. Kamie is remembered as a fighter, a mother and a friend. For those who knew her, she was never a victim of breast cancer. Her cancer was first detected in 2000, when she was 35 years old. For the next five years, she spent time in and out of the hospital with relapses and tests.
As the cancer progressed, Kamie began to prepare her children for a life without her. She left behind valuable genetic information for her three children as Kamie tested positive for BRCA1. It was in those hospital rooms Brandi learned about the genetic mutation her mother carried, a mutation she and her siblings had a 50/50 chance of also having. In addition to a mother’s typical expectations for going to college and looking out for each other, Kamie asked each of her children to learn their risk, in order to be proactive with their health rather than reactive. Several years later, medical professionals used Kamie’s results as a starting point to test her children for the same mutation.
As her legacy lived on, so did the need to raise awareness about the significance of hereditary cancer. The foundation was created by her oldest daughter, Brandi, in her memory, to educate and raise awareness of hereditary cancers to those most at risk. We believe that when people know their risks of developing cancer, they can take the necessary steps to fight the odds.
Since then, Brandi has fulfilled the promise she made at her mother’s bedside. At age 19, she completed genetic testing and learned that she too carries the BRCA1 mutation, giving her an 87% lifetime risk of breast cancer and 63% lifetime risk of ovarian cancer.
“BRCA has been a gift, although not wrapped very beautifully; it has given me the ability to take control of my health and encourage others to do the same,” Brandi has said since her prophylactic mastectomy at age 22. She no longer fears suffering from or losing her life to breast cancer, like so many women in her family have.
Current Executive Director
Sarah Virus, the current executive director of the Hereditary Cancer Foundation, is a passionate advocate for hereditary cancer awareness. Personally affected by a hereditary cancer gene mutation as a gene carrier, she dedicates her efforts to educating others on the importance of genetic testing and early detection.
OUr Team
At The Hereditary Cancer Foundation, our dedicated team is committed to advancing the fight against hereditary cancer. Comprising passionate professionals with diverse expertise, we work collaboratively to provide comprehensive support, education, and resources to individuals and families affected by hereditary cancer. Together, we strive to foster a community of hope, empower those at risk, and drive impactful research and awareness initiatives. Meet the team that makes our mission possible.
Since our founding in 2015, The Hereditary Cancer Foundation was initially driven by a team of dedicated volunteers. In 2023, we reached a significant milestone by appointing our first full-time Executive Director. This achievement was made possible by the unwavering commitment and hard work of our volunteers during the early years. Our continued growth and success are a testament to the dedication of our Executive Director and the current Board of Directors. Together, we are united in our mission to support and empower those affected by hereditary cancer.
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Board of Directors
- Brandi Preston Muhle
- Denise Ibsen-Cole
- Sylvia Stone
- Leah Reineke
- Katie Ohnoutka
Advisory Committee
- Audra Meador
- Skyler Jesz, PA-C
- Dr. Annie Leishman-Barb